Publications
Scale Development
Jones RC, Hyland ME, Hanney K, Erwin J. A qualitative study of compliance with medication and lifestyle modification in Chronic Obstructive Pulmonary Disease (COPD). Prim Care Respir J. 2004;13(3):149–54.
Hyland ME. Information needs in COPD patients : the Lung Information Needs Questionnaire. Airways J. 2005;3:142–4.
Validation Study
Hyland ME, Jones RC, Hanney KE. The Lung Information Needs Questionnaire: Development, preliminary validation and findings.Respir Med. 2006;100(10):1807–16.
Publications
Nohara SS, Souza GF, Leão ME, Fleury AC, Jardim JR. Reproducibility of the Lung Information Needs Questionnaire Via Phone Call Compared With Face-to-face Application in Patients With Chronic Obstructive Pulmonary Disease. Archivos de bronconeumologia. 2025;61(3):166–7.
Muijsenberg AJ, Houben-Wilke S, Tatousek J, Lacroix J, Spruit MA, Janssen DJ. Educational needs of people with COPD or asthma entering pulmonary rehabilitation and their significant others: A cross-sectional study. Chronic respiratory disease. 2025;22:14799731251316891.
Flynn S, Mosher CL, Cornelison S, Rao E, Metzler KA, Pu W, et al. Feasibility, Usability, and Pilot Efficacy Study of a Software-Enabled, Virtual Pulmonary Rehabilitation with Remote Therapeutic Monitoring. International Journal of Chronic Obstructive Pulmonary Disease. 2025;20:231–41.
Cheung CY, Yam WS, Palmer MD, Clarke S, Dc Man W, J Roberts N, et al. Is videoconference pulmonary rehabilitation associated with improvements in knowledge in people living with COPD? A propensity-matched service-evaluation. Chronic respiratory disease. 2025;22:14799731241310895.
Kim SH, Cho HH, Myung-Jun S, Kim KU, Tae Sung P, Jun Yong P, et al. Prevalence and clinical characteristics of Sarcopenia in older adult patients with stable chronic obstructive pulmonary disease: a cross-sectional and follow-up study. BMC Pulmonary Medicine. 2024;24:1–10.
Yao X, Li J, He J, Zhang Q, Yu Y, He Y, et al. A Kano model-based demand analysis and perceived barriers of pulmonary rehabilitation interventions for patients with chronic obstructive pulmonary disease in China. PLoS One. 2023;18(12).
Tonguino Rosero S, Ávila Valencia JC, Betancourt Peña J. Impact of telephone follow-up on COPD outcomes in pulmonary rehabilitation patients: A randomized clinical trial. Can J Respir Ther. 2023;59:245–55.
Sandelowsky H, Krakau I, Modin S, Ställberg B, Nager A. Primary care patients with mild or stable chronic obstructive pulmonary disease need more support in disease management: a secondary analysis of a cluster randomized controlled trial. Scandinavian Journal of Primary Health Care. 2023;41(4):495–504.
Aljazeeri J, Almusally R, Wert Y, Abdelhalim M, Klinger C, Ramesh N, et al. Pulmonary Rehabilitation for Post-COVID-19. Journal of cardiopulmonary rehabilitation and prevention. 2023;43(6):438–43.
Kim SH, Park HE, Yoon JA, Shin YB, Shin MJ, Kong IJ, et al. The Korean‐Lung Information Needs Questionnaire: Translation, validation and clinical implications in comprehensive pulmonary rehabilitation. The Clinical Respiratory Journal. 2022;16(5):343–51.
Hajialibeigloo R, Moradi Y, Habibzadeh H, Baghaei R, Alinejad V, Mohammad Namazi N. The COVID-19 patients’ educational needs assessment questionnaire (COPENAQ): development and psychometrics. Health and Quality of Life Outcomes. 2022;20:1–12.
Bandurska E. The Voice of Patients Really Matters: Using Patient-Reported Outcomes and Experiences Measures to Assess Effectiveness of Home-Based Integrated Care-A Scoping Review of Practice. Healthcare (Basel). 2022;11(1).
Annaka H, Nomura T, Moriyama H. Cognitive Function and the Ability to Operate Long-Term Oxygen Therapy Equipment: An Exploratory Study. International Journal of Environmental Research and Public Health. 2022;19(17):10708.
Wakabayashi R, Bourbeau J, Sedeno MF, Motegi T, Kutsuzawa T, Urano T, et al. Multicentre comparison of self-management in patients with COPD. ERJ Open Res. 2021;7(3).
Siltanen H, Aine T, Huhtala H, Kaunonen M, Paavilainen E. The information needs of people with COPD—The holistic approach with special reference to gender and time since diagnosis. Nursing Open. 2021;8(5):2498–508.
Janssen SM, Vliet Vlieland TP, Volker G, Spruit MA, Abbink JJ. Pulmonary Rehabilitation Improves Self-Management Ability in Subjects With Obstructive Lung Disease. Respir Care. 2021;66(8):1271–81.
Jang S, Kim Y, Cho WK. A Systematic Review and Meta-Analysis of Telemonitoring Interventions on Severe COPD Exacerbations.Int J Environ Res Public Health. 2021;18(13).
Chiyesu W, Rasmussen S. Influence of a Pulmonary Rehabilitation Education Programme on Health Outcomes for Chronic Obstructive Pulmonary Disease (COPD). Kai Tiaki Nursing Research. 2021;12(1):49–59.
Wouters TJ, van Dam van Isselt EF, Achterberg WP. Information needs of older patients living with chronic obstructive pulmonary disease (COPD) indicated for a specific geriatric rehabilitation programme: a prospective cohort study. Int J Palliat Nurs. 2020;26(5):238–45.
Amado CA, Pérez-García C, Tamayo FB, Agüero-Calvo J, Muñoz-Cacho P, Golpe R. Information Needs in COPD After an Educational Programme: Influence in Exacerbations and Admissions. International Journal of Chronic Obstructive Pulmonary Disease. 2020;15:2663–71.
Wakabayashi R, Motegi T, Kida K. Gender Differences in Chronic Obstructive Pulmonary Disease Using the Lung Information Needs Questionnaire. SAGE Open Nursing. 2019;5.
Sandelowsky H, Krakau I, Modin S, Ställberg B, Nager A. COPD patients need more information about self-management: a cross-sectional study in Swedish primary care. Scand J Prim Health Care. 2019;37(4):459–67.
Barnett T, Jenkins A, Bouldin A, Crumby M, Morgan AK, Warren ML. Assessing Quality of Pharmacist-Led Education for Patients with COPD Using the Lung Information Needs Questionnaire: A Pilot Study. Innov Pharm. 2019;10(2).
Wakabayashi R, Kusunoki Y, Hattori K, Motegi T, Furutate R, Itoh A, et al. Effectiveness of home-based exercise in older patients with advanced chronic obstructive pulmonary disease: A 3-year cohort study. Geriatr Gerontol Int. 2018;18(1):42–9.
Janaudis-Ferreira T, Carr SJ, Harrison SL, Gershon AS, Milner SC, Carr S, et al. Can Patients With COPD Assimilate Disease-Specific Information During an Acute Exacerbation?: Results of a Pilot Randomized Controlled Trial. Chest. 2018;154(3):588–96.
Blackstock FC, Goldstein RS, Kelly W, Lee A, Meek PM, Singh S, et al. Chronic Obstructive Pulmonary Disease Education in Pulmonary Rehabilitation. Annals of the American Thoracic Society. 2018;15(7):769–84.
Sandelowsky H, Krakau I, Modin S, Ställberg B, Nager A. Case Method in COPD education for primary care physicians: study protocol for a cluster randomised controlled trial. Trials. 2017;18(1):197.
Rocker GM, Amar C, Laframboise WL, Burns J, Verma JY. Spreading improvements for advanced COPD care through a Canadian Collaborative. International Journal of Chronic Obstructive Pulmonary Disease. 2017;12:2157–64.
Early F, Young JS, Robinshaw E, Mi EZ, Fuld JP. A case series of an off-the-shelf online health resource with integrated nurse coaching to support self-management in COPD. International Journal of Chronic Obstructive Pulmonary Disease. 2017;12:2955–67.
Cleutjens F, Spruit MA, Ponds R, Vanfleteren L, Franssen FME, Dijkstra JB, et al. The Impact of Cognitive Impairment on Efficacy of Pulmonary Rehabilitation in Patients With COPD. J Am Med Dir Assoc. 2017;18(5):420–6.
Spruit MA, Singh SJ, Garvey C, ZuWallack R, Nici L, Rochester C, et al. An official American Thoracic Society/European Respiratory Society statement: key concepts and advances in pulmonary rehabilitation. Am J Respir Crit Care Med. 2013;188(8):e13–64.
Pinnock H, Hanley J, McCloughan L, Todd A, Krishan A, Lewis S, et al. Effectiveness of telemonitoring integrated into existing clinical services on hospital admission for exacerbation of chronic obstructive pulmonary disease: researcher blind, multicentre, randomised controlled trial. BMJ : British Medical Journal (Online). 2013;347.
Hayton C, Clark A, Olive S, Browne P, Galey P, Knights E, et al. Barriers to pulmonary rehabilitation: characteristics that predict patient attendance and adherence. Respir Med. 2013;107(3):401–7.
Wakabayashi R, Motegi T, Yamada K, Ishii T, Jones RC, Hyland ME, et al. Efficient integrated education for older patients with chronic obstructive pulmonary disease using the Lung Information Needs Questionnaire. Geriatr Gerontol Int. 2011;11(4):422–30.
Scott AS, Baltzan MA, Dajczman E, Wolkove N. Patient knowledge in chronic obstructive pulmonary disease: back to basics. Copd. 2011;8(5):375–9.
Dodd JW, Hogg L, Nolan J, Jefford H, Grant A, Lord VM, et al. The COPD assessment test (CAT): response to pulmonary rehabilitation. A multicentre, prospective study. Thorax. 2011;66(5):425.
Barnett M. Promoting self-management for patients with COPD. Journal of Community Nursing. 2009;23.
Sauro A, Greco A, Lo Greco P, Scalzitti F, Sirignano AR, Sortino D, et al. The COPD Italian Lung Information Needs Questionnaire (LINQ): development, preliminary validation, and findings. Eur J Gen Pract. 2008;14(2):65–7.
Jones RCM, Wang X, Harding S, Bott J, Hyland M. Educational impact of pulmonary rehabilitation: Lung Information Needs Questionnaire. Respiratory Medicine. 2008;102(10):1439–45.
Jones R. Too little, too late–the patients’ perspective on education for COPD. Chron Respir Dis. 2007;4(4):189–90.
Jones RCM, Hyland ME, Hanney KE. Preliminary data from the Lung Information Needs Questionnaire (LINQ). Primary Care Respiratory Journal. 2005;14(5):270–1.